Sickle Cell Information Center

Ellen Weinstein illustration

Project Overview

The Sickle Cell Information Center website, begun in 1997, was thoroughly updated in 2016 in collaboration with ECDS to incorporate stories, history, art, and social media along with news and research updates, providing broader context about the condition which can affect the quality and length of a person's life.

The project team of health care experts set out to broaden the site's reach by diversifying its content, and online visitors can now browse the site to find:

  • A range of resources tailored for audiences including patients and families, health care providers, teachers and students, blood banks and donors, and employers
  • PubMed research sources
  • Patient narratives
  • Stories, art and music
  • Historical perspectives
  • Lists of related organizations and activist groups
  • Newsletters
  • An Instagram feed

The redesign adheres to the original site's look and feel, including the logo, in order to offer visual continuity to site visitors. And with so many people diagnosed with sickle cell anemia living in countries with varied online access, the site retains a streamlined approach to content.

Project Highlights

Emory Partners

Library and Information Technology Services (LITS)

School of Medicine

School of Public Health

Winship Cancer Institute

Additional Partners

AFLAC Cancer and Blood Disorders Center

Children's Healthcare of Atlanta

Grady Health System: Comprehensive Sickle Cell Center


AFLAC Cancer and Blood Disorders Center at Children's Healthcare of Atlanta

Faculty Council | University Research Committee Award

Andrew W. Mellon Foundation

Project Contacts Sickle Cell Information Center website
Technology WordPress

Key Contributions

ECDS projects advance Emory University's mission through research, pedagogy, publishing, and public scholarship.

Research The site integrates medical humanities materials with a range of resources tailored for audiences including health care providers. Emory clincians are contributing content.
Teaching The site's main focus is to make patients more educated about their disease.
Publishing The project represents a collaborative publishing effort that incorporates medical publishing information with medical humanities content.
Public Scholarship The site is designed to serve audiences including patients and families, teachers and students, blood banks and donors, and employers.